Rare Patient Voice announces staff changes

Debi Crist has been promoted to director of patient engagement and panel management. She has been with Rare Patient Voice since 2017 and is also an active patient advocate in the Crohn’s and Ulcerative Colitis community. Since joining RPV full-time, Debi and her team have added more than 2,100 referral partners to help the company recruit patients and caregivers.

Tiffany White has been promoted to director of business development. She has been with Rare Patient Voice since 2017 and works directly with clients on RPV’s service offerings, providing feasibility and pricing for market research studies. Tiffany and her team provided over 7,500 bids to clients for projects last year.

Laura Mullen has been appointed director of marketing and communications. She joined Rare Patient Voice as a consultant in 2021 and brings a strong background and wealth of experience in marketing and PR across the non-profit, healthcare and private sectors.

Commenting on the changes, Wes Michael, president and founder of Rare Patient Voice, said: “Since launching in 2013, the mission of Rare Patient Voice has been to empower patients and caregivers to share their voices with the researchers and companies developing products to improve their lives.

“Over the years our community has grown to more than 100,000 patients and caregivers of nearly 700 rare and non-rare diseases, now including more than 2,100 referral partners representing patient advocacy organisations, support groups and individuals.

“We’ve completed over 5,000 projects and expanded beyond the US to Canada, the United Kingdom, Italy, Germany, France and Spain. I am particularly happy to announce that we have now paid patients and caregivers more than $8 million over the past nine years for their participation in research studies. I’m also pleased about our internal news, which underscores the quality and hard work of our staff at RPV.”